Sunday, May 22, 2016

The Silence of RAD

Its been a very hard few days in our home.  L has been raging more often and creating more chaos than normal.  Most days the noise and chaos of RAD can be overwhelming to those living with it.

The only problem is, our family can't share some of the hardest moments we endure...because of the way it would look to the world around us.

We live under the silence of RAD.

I've talked to so many people who have lived their own types of hell.  They've lost their mother, their father, their sister, or brother.  They've lost a child or spouse from sickness or a terrible accident.

I've talked to people who have recovered or are recovering from drugs or alcohol.  People who have lost homes, or spouses have cheated and caused abuse and broken up their family.  There are people who live with unending health problems or pain or the longing desire to have a child (I live with these as well).  There are people who don't have enough money to pay for their child's needs or wants.

The list of trials in this life is unending.

This life we live is messy and painful.  It is heart-wrenching and overwhelming at times.  It so often brings us to our knees in fear and hurt.

Sometimes we just don't know how much more we can handle before we break.

We all suffer, we all endure pain.  It's just that sometimes that pain goes un-noticed.

The problem of living with a child who may not be sick in body but in mind is, so few seem to understand.  So few can see the toll it takes and most wonder why we seem downtrodden or sad most days.  I know so many moms in my little mental health world who happen to be some of the strongest and most loving moms I've even encountered.  Their quiet strength and struggle is real, it's hard, it's painful, it's fearful and most days hopeless.  I've seen those same mothers not have the support of a husband, mother, or best friend.  I've seen those mothers cry in desperation over something even the professionals don't seem to want to understand.

The silence of mental health problems kills over 17 million people each year.  And yet, we call them weak and selfish.  It's unspeakable and taboo.

As I have watched so many go through the various trials of this earth, I have also seen amazing outreach to them.  The kind of empathy they receive is full of love and from the heart.  Their financial needs are met, they are given meals and help for their home.  People send cards and flowers.  They are given awards and praise for their endurance and faith.  Their courage astounds many and they are only loved more for their pain.

This is how it should be when anyone suffers...giving love and empathy without judgement.

This, however for the most part, is not the case for mothers of RAD children.

Our pain and dark moments happen in the seclusion of our home.  No one sees it or hears it.  No one can fathom that a child, as young as three could be a source of hurt and constant stress to her family. No one can come close to understanding the constant pain a five year old can cause their mother because of how cruelly they treat her.  No one can truly empathize with the mom who has to hold her child down for over an hour at a time so the child isn't a danger to herself or others as she writhes like a wild animal, screaming how much she hates her mother and tries to physically hurt her  No one can even think to believe that a seven year old spits on her mother and calls her dirty names, leaves bruises over her mother's legs from kicking her, and draws blood from pinching and scratching her arms.

How can this even be possible, so many question?  After all, Christ wants us to become like a little child.  They are perfect and full of love and forgiveness.  People so often think, "It must be that they are bad parents or maybe abusive."  They think, "I would never do that, or I would never allow it.  I would do it better than them all with a smile on my face."

In the end we are seen as weak and sometimes abusive.  We gain empathy from so few (and you few mean the absolute world to us).  We question our every move out in the world and worry how we will survive this every day battle without having social services called on us.

No one can know to come to our rescue when L is hurting us with words and punches.  There are no cards or flowers of sympathy.  There are no fundraisers for her expensive therapy or offers to help us in our home. Most people avoid us and brush us off as crazy or too emotional or in the end just don't know what to do.

Parents of RAD children suffer in a bitter silence most days.

Our world is too strange and sometimes unbelievable to those even in our inner circle.  Our hearts break daily with the unknowns.  We fear social engagements; we fear questions and false judgement. We fear our every move as we are in constant offensive or defensive mode, trying to outsmart our beautiful and very intelligent RAD children.  We are exhausted and stressed daily with the worry of what RAD will do to our children's future.  Will they get better or will they get worse?  Will we lose our L forever because of the life she will live?  Will she hurt my other children or someone else's? Will she never know love?

She is seven and she tells me almost daily she wants to die.  She talks freely of hurting me and how she would rather me be dead than be her mom.  My hell is the worry of whether she will do something about her threats.  My pain is knowing that if a knife goes missing, I have to assume it's her.  My anguish is missing out on having a child who can feel love and give it back.

L has never felt the joy and fun of being a child.  She has never known how to love or be loved.  My L suffers just like any child with a debilitating sickness suffers.  Her life has been nothing but a show to those around her.  It is here, in our home, she can be herself.  Here in her home, she writhes and fights against those who love her most.  Here in our home, where the cries of a mother and father pleading for her healing can be heard.  Here in our home, is where we feel and endure the most pain.

The silence of RAD has become my everlasting companion.  It has become my story.  It has become my life.

"A deep sense of love and belonging is an irreducible need of all people. We are biologically, cognitively, physically, and spiritually wired to love, to be loved, and to belong. When those needs are not met, we don't function as we were meant to. We break. We fall apart. We numb. We ache. We hurt others. We get sick." 
Brene Brown

Our daughter suffers and so do we...EVERY.  SINGLE.  DAY.  It never goes away, we never get to grieve we never get a break...this is our life.  This is our misery and growth. 

"Vulnerability is about showing up and being seen. It's tough to do that when we're terrified about what people might see or think." 
Brene Brown
I'm trying to show up.  I'm trying to educate.  I'm trying to not be hurt by those who judge me harshly or brush me off because of my trials.  I'm trying to live my story and I pray we can all see the pain of mental health and be more helpful and loving towards people and families who live with it in silence.  

Having a sick brain does not make you weak, it makes you sick.  And every sickness deserves love and attention.

Lots of love,
Niki




12 comments:

  1. Sending prayers your way. <3 Love you, Niki! You are an amazing mother and person! I'm thankful to have met you, and to have spent a time (a long time ago) in the same ward. Thank you for bravely sharing your life so that others could be more aware and more loving to all around them. <3 Thank you for your example. :)

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  3. You are an amazing mother, Niki. And you were prepared to succeed and to fail, but you only will see at the end. we love you and pray for you and your dear family daily. You have been not forgot. Heaven and earth are aware of your sufferings, but I come to believe that strength has been provided on a daily bases. I know that the Lord not forsake those that trust Him, and humble themselves to the will of the Father. May the Spirit of the Lord be with you always. We love you and care for you.
    Mae

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    1. Love you, too. I know we have the prayers of our family and most of our friends. I do believe Heavenly Father has helped us so much in this process by providing the best resources available. I do feel His strength most days...but I also know that He won't take RAD away from her. I know that we are going to have to do all that we can first. And that "all that we can" takes its toll on me. Most of what we suffer, we can't talk about because of how awful it really is. Thank you for you love and your unending faith.

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  5. Niki, You are understood and accepted by MANY more loved ones and friends than you may realize. You have an army of support and love, without judgment. We are all here for you. We love you so much! When you are hurt by the remarks or judgment of the teensy minor part of your circle of friends, understand right then and there: THEY ARE JUST FLAT-OUT WRONG. The overwhelming majority of your friends will understand, forgive bad days, trust that you are all doing the best you can. You're doing a whole bunch better than I could ever do. But you do it with love. You are rocking this tough parenting gig! Love you!!!!! Heather

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    1. I know that I have a great many friends who love and believe me...and I LOVE YOU!! But this post was written to the many (and there are many) who just aren't sure whether RAD is real or not. You might be surprised how many people (including professionals) just flat out call us bad parents who don't know how to love their kids right. You'd be surprised how many people will tell us we are using RAD as a crutch to hurt our own children. I know I have an army of friends and family, but a lot of it is because I've spoken out...not being silent has brought awareness and love to our family. Those that know us, have our back. We know this. But there are SO SO SO many mothers out there that don't have this support, no one believes them, no one helps them and I am just trying to be the voice of those who aren't being heard. I love you so very much, I hope you know this. I have been able to help at least five families get the help they need because of my blog. I also don't know if I'm really hurt anymore by people, but I do get angry. I get angry because they don't want to see it, they don't want to believe it (again, this is includes the professionals). RAD moms are fighting for help in all aspects of our lives, professionally, economically, and spiritually and until we show how hard it really is, we won't get the support we need. I hope you don't take this post as I am not grateful for my army, as it's not...I realize it was a little more edgy but I hope one day there will be 5ks for RAD or communities rallying around a family with flags to bring awareness to this all too real disorder. Then our fight will be heard my many, our voices will outdo those who really do chose to keep our pain in the dark. These blunt posts are just the start of getting the word out :) LOVE YOU! LOVE YOU!! LOVE YOU!!

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  6. Dear Niki, you fall into a group of select women I know who are amazing, talented, and so good at loving and supporting others...AND THEN, when I am privileged to get better acquainted, I realize they are, everyday, holding the WEIGHT of the world on their shoulders. And I wonder...how can they (and you) hold that weight...and yet, you do. And you do it with such grace and concern for others even as the weight intensifies. I don't understand why these things must be for such good people, but I know that you are an exemplary person and a super-hero daughter of God. I love you and believe in you always!!

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    1. Thank you so much for always being so wonderful to us! I miss and love you tons!

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